TYPES OF LUPUS
The primary purpose of the Association is to provide educational and emotional support to Lupus patients, family members and friends.
Many of our members are Supporters of people with Lupus.
Bermuda Lupus Association
THE LUPUS ASSOCIATION
• Provides a service to patients and families via telephone support and home and/or hospital visits.
• Distributes educational material from international sources to the community about the symptoms, diagnosis and treatment of Lupus.
• Holds quarterly events with the Members (ie meetings with health care professionals as guest speakers or social events).
WHAT IS LUPUS
Lupus is an autoimmune disease, which means that the immune system mistakes the body's own tissues as foreign invaders and attacks them.
LIFE OVER LUPUS
Being diagnosed with Lupus can be over whelming. With its ups and downs and flares and remissions, lupus can lead to an over...whelming feelings of loss and lack of control. Anxiety, anger, loneliness and isolation are common. Many people with lupus say they feel misunderstood by friends, colleagues, and loved ones. But do know that you are not alone.
ARE HERE FOR YOU
To Help You Survive One Day At A Time
WHAT IS THE OUTLOOK
Problems (called flares) with lupus tend to come and go over time, and the symptoms are often not clear lupus can be hard to diagnose. There is no single laboratory test to prove that a person has this complicated illness.
There isn’t a cure but a person can go into remission. The outlook for lupus varies, depending on the organs involved and the severity of symptoms. Most people with lupus can expect to have a normal lifespan, especially if they follow their doctor's instructions and their treatment plans.
LIVING WITH SOMEONE WHO HAS LUPUS
If someone close to you has lupus, your life will likely be affected, as well. It is important to understand your loved one's illness and what he or she may be expecting from you.
•Learn about lupus and its treatment.
•Don't push. Give your loved one enough space to deal with the illness and regain some control over his or her life.
•When possible, go with the person to the doctor. This is a good way to offer support and to listen to what the doctor says. Sometimes, a person feels overwhelmed and cannot take in everything the doctor says.
•Encourage the person to take care of himself or herself and to follow the doctor's treatment plan, but do it gently. Be patient and don't nag.
•Be open with the person.